Iowa Seizure Smart Conference
This is our annual statewide family & caregiver epilepsy education conference! We welcome all individuals who are interested in the research, treatments and resources related to epilepsy. For information on current and former Iowa Seizure Smart Conferences, click here.
Seizure Education Programs
Epilepsy Foundation Iowa offers a variety of educational training programs, which are standardized curriculum from the National Epilepsy Foundation. Our wide array of seizure education programs serve people living with epilepsy, families, friends, caregivers, first responders, law enforcement, school personnel, nurses, professionals and the general public.
- Seizure Recognition & First Aid Certification for the General Public
- Managing Students with Seizures: The Importance of School Nurses
- Seizure Training for School Personnel
- Take Charge of the Storm (Program for Middle School Students)
- Take Charge of the Facts (Program for High School Students)
- Take Charge Jr. (Program for Elementary Students)
- Seizure Training for Childcare Personnel
- Seniors and Seizures
- Epilepsy and Seizure Response for First Responders
- Epilepsy and Seizure Response for Law Enforcement
Seizure First Aid Certification
Do you know what to do when someone has a seizure? Seizure First Aid Certification is a formal training offered by the Epilepsy Foundation that teaches people how to recognize signs of a seizure, how to respond with proper seizure first aid, and when to call for help. Click here to learn more and sign up for a free Seizure First Aid Certification course!
Epilepsy Empowerment Group Meetings
Community-organized meetings for people connected to epilepsy looking to empower themselves through resources and relationships. All are welcome to attend and we encourage you to reach out to family, friends, co-workers, neighbors, etc. who you think might be interested in attending as well. Please join us!
Cedar Rapids Epilepsy Empowerment Group, for information contact Roxanne Cogil at firstname.lastname@example.org or 515-238-7660.
Des Moines Epilepsy Empowerment Group, for information contact Roxanne Cogil at email@example.com or 515-238-7660.
Iowa City Epilepsy Empowerment Group, for information contact Roxanne Cogil at firstname.lastname@example.org or 515-238-7660.
We are providing educational evening seminars in Iowa communities with Iowa-based Neurologists as our speakers. This is to reach out to even more families at any point in their epilepsy journey and assess their needs & interest in engagement with the Foundation. We also wish to connect with providers and caretakers who interact with people with epilepsy on a regular basis.
Epilepsy Education & Literature
We have a variety of epilepsy education materials from our National Epilepsy Foundation office, which we can provide to families, caregivers, professionals and neurology clinics across the state of Iowa.
Epilepsy Education Folders for newly diagnosed
We assemble newly diagnosed epilepsy folders for adults and pediatrics who are newly diagnosed with epilepsy and distribute these in neurology clinics across the state. We can also mail out the purple newly diagnosed folders to families. These purple folders are loaded with valuable resources and epilepsy education information.
Individual and Family Support
We receive calls and emails from a variety of persons from across the state with questions regarding challenges associated with their epilepsy. We can help guide people to resources to help overcome the challenges. Frequent requests people seek help for are regarding disability, employment, transportation, housing, IEP and 504 School Plans, medication assistance programs, locating comprehensive epilepsy centers, seizure detection devices, service dogs, information on seizure types, as well as seizure first aid training requests and much more.
Information & Referral
Individuals who call in the National Epilepsy & Seizures 24/7 Helpline can request to be contacted by their local affiliate. For those in Iowa who call in on this line and request local EF contact, staff from EF Iowa will follow up with a phone call regarding local resources and support. We also provide information and referral for those who call in the EF Iowa office, but we do not provide medical advice.
Epilepsy Foundation Kids Crew
The Epilepsy Foundation thinks that kids have big hearts and are able to do amazing things. We created the Kids Crew with three areas in mind where we believe you can excel in your journey with epilepsy. The program is free to join and is for kids ages 14 and under of all abilities. If you don’t have epilepsy, we still want you to join. Often, siblings, friends, and relatives of those with epilepsy are the best advocates. We are looking for those who want to learn, spread awareness, and make a difference. And have fun, too!! Click here to learn more and sign up!
The SUDEP Institute carries out SUDEP education and awareness for people impacted by epilepsy and medical professionals, drives and supports research into the causes of and ways to prevent SUDEP, offers bereavement support services and an online community for those affected by SUDEP and works together with other epilepsy organizations to find the answers to SUDEP and help families with epilepsy. Click here to learn more.
Free Medical Epilepsy ID Jewelry
The EF Iowa office has received funding to provide free medical epilepsy ID bracelets and necklaces to adults with epilepsy, as well as free medical ID fabric wristbands and shoe tags for children with epilepsy. (See picture below.)
Two camps are held in the summer for youth in and around Iowa. CamPossible in New Liberty, Iowa has been cancelled for 2020. You can e-mail QuadCitiesEAN@gmail.com for information on CamPossible. CampYouCan has also been cancelled for 2020. Visit the Midwest YouCan Foundation website for more information on their epilepsy camp.
The Epilepsy Foundation’s Iowa office has funding available for Iowa youth with a seizure disorder who would like to attend an epilepsy camp of their choice. Available funding is equal to the cost of the camp up to a maximum of $200. An application for this funding will be made available closer to camp season. The EF Iowa Camp Scholarship Committee review applications and advise you if your child is a recipient of a camp scholarship. The actual funding is dependent on showing proof of acceptance to the epilepsy camp.