Iowa Seizure Smart Conference
The 2016 Iowa Seizure Smart Conference was at the Radisson Hotel and Conference Center in Coralville on November 5th! This is our annual statewide family & caregiver epilepsy education conference! We welcome all individuals who are interested in the research, treatments and resources related to epilepsy. Details about keynote speakers and presenters can still be seen here.
Details for the 2017 conference will be announced as they are set!
Seizure Recognition & First Aid Training
Seizure first aid training is a service provided to multiple audiences at no charge across the state of Iowa. Many programs available is of high quality and standardized from the National Epilepsy Foundation’s materials. Customized epilepsy education programs are available for a variety of audiences, including:
- Seizure Recognition, First Aid & Safety
- Seizure Recognition, First Aid & Treatment Options
- Managing Students with Seizures: A Training for School Nurses
- Seizure Training for School Personnel
- Take Charge of the Storm (Program for Middle School Students)
- Take Charge of the Facts (Program for High School Students)
- Variety of books to read to Elementary Students
- Seizure Training for Childcare Personnel
- Seniors and Seizures
- Epilepsy and Seizure Response for EMS
- Epilepsy and Seizure Response for Law Enforcement
Iowa Epilepsy Empowerment Group Meetings
Community-organized meetings for people connected to epilepsy looking to
empower themselves through resources and relationships. Please join us! A full listing of the sites, times and dates of the meetings across Iowa can be found here. Even more details about the Des Moines EEG’s 2017 plans can be found here.
Epilepsy Education Seminars
We are providing educational evening seminars in Iowa communities with Iowa-based Neurologists as our speakers. This is to reach out to even more families at any point in their epilepsy journey and assess their needs & interest in engagement with the Foundation. We also wish to connect with providers and caretakers who interact with people with epilepsy on a regular basis.
Epilepsy Education & Literature
We have a variety of epilepsy education materials from our National Epilepsy Foundation office, which we can provide to families, caregivers, professionals and neurology clinics across the state of Iowa.
Epilepsy Education Folders for newly diagnosed
We assemble newly diagnosed epilepsy folders for adults and pediatrics who are newly diagnosed with epilepsy and distribute these in neurology clinics across the state. We can also mail out the purple newly diagnosed folders to families. These purple folders are loaded with valuable resources and epilepsy education information.
Individual and Family Support
We receive calls and emails from a variety of persons from across the state with questions regarding challenges associated with their epilepsy. We can help guide people to resources to help overcome the challenges. Frequent requests people seek help for are regarding disability, employment, transportation, housing, IEP and 504 School Plans, medication assistance programs, locating comprehensive epilepsy centers, seizure detection devices, service dogs, information on seizure types, as well as seizure first aid training requests and much more.
Information & Referral
Individuals who call in the National Epilepsy & Seizures 24/7 Helpline can request to be contacted by their local affiliate. For those in Iowa who call in on this line and request local EF contact, staff from EF Iowa will follow up with a phone call regarding local resources and support. We also provide information and referral for those who call in the EF Iowa office, but we do not provide medical advice.
Studio E: The Epilepsy Art Therapy Program
Studio E is a multi-week art therapy program open to people with epilepsy in 47 U.S. cities, where participants are given the opportunity to creatively express themselves and their emotions. Living with epilepsy can be challenging and art therapy may be beneficial in working through how the condition impacts an individual’s life. The EF Iowa office runs Studio E in the spring in Des Moines and Iowa City for adults with epilepsy and at the Iowa Seizure Smart Conference for youth with epilepsy during the Children’s Educational Session. Check our events calendar for the dates of this year’s program.
Iowa Epilepsy Youth Council
The mission of the Iowa Epilepsy Youth Council is to improve the understanding and awareness of seizures among their peers and educators. The purpose of the youth council is to educate, empower and to eliminate social stigma. The youth council is a group of teenagers and young adults who collaborates with the Epilepsy Foundation’s Iowa office to eliminate stigma and uphold the mission of the Epilepsy Foundation through youth oriented projects and programming.
Youth are the future and offer a unique perspective and creativity with new ideas. Youth with epilepsy often feel isolated, nervous and anxious about having a seizure in school in front of their peers. Youth respond more readily to other youth which makes it easier to carry out workshops and trainings. Social gatherings will offer the opportunity for youth to come and share the difficulties they may feel because of their epilepsy in order to increase their self-esteem and to decrease social stigma. The youth will attend health fairs in the state, promoting epilepsy education and awareness and participating in some selected seizure trainings for social service groups and schools.
Free Medical Epilepsy ID Jewelry
The EF Iowa office has received funding to provide free medical epilepsy ID bracelets and necklaces to adults with epilepsy, as well as free medical ID fabric wristbands and shoe tags for children with epilepsy. (See picture below.)
Two camps are held in the summer for youth in and around Iowa. CampYouCan is in Omaha and will be June 1-4 this year. CamPossible is June 4 – 10, 2017 in New Liberty, Iowa. As the events come closer, more details and registration information will be made available.
The Epilepsy Foundation’s Iowa office has funding available for Iowa youth with a seizure disorder who would like to attend an epilepsy camp of their choice. Available funding is equal to the cost of the camp up to a maximum of $200. To apply for this funding, please fill out an application and the Epilepsy Foundation’s Iowa Community Council Camp Scholarship Committee will review it and advise you if your child is a recipient of a camp scholarship. The actual funding will be dependent on showing proof of acceptance to the epilepsy camp.